He seems to be declining quickly on his arms so I’m thinking foot operation would be best — even his wife reports this disease is moving fast 

On Aug 15, 2019, at 4:49 PM, Amy Roman <xxxxxx@sbcglobal.net> wrote:

Hi Alisa,
Our OT and PT say there are many solutions but they need more info on the abilities he does have. They need active range of motion and strength of his bilateral upper extremities. Is he able to sponge himself? Are you looking for foot operated?






Sincerely,

Amy Roman, MS, CCC-SLP
Augmentative Communication Specialist


Forbes Norris ALS Research and Treatment Center
& ALSA Golden West AAC Evaluation Center and Lending Library

1100 Van Ness Ave.
6th Floor
San Francisco, CA 94109

Cell (415)518-0592
Fax (415)375-4827

AmyandpALS.Com
Pinterest.com/AmyandpALS
On Thursday, August 15, 2019, 1:33:07 PM PDT, Alisa Brownlee <xxxxxx@alsa-national.org> wrote:


Hi all,

I have a person with ALS that has very limited arm function - the disease is affecting his arms first.

He wants to remain as independent as possible when showering.  We discussed using a shower chair for safety and he is inquiring if there is a better shower valve (knob) to use for someone in his condition?  (obvious he needs temp control valve too but that a different issue)

Thanks,
Alisa