Interesting (non AT) article 


Children, Teens Face Burdens as ALS Caregivers

— Youths want more information about ALS, more connection with caregivers their age

People with amyotrophic lateral sclerosis (ALS) relied on children and teens in the household for help, presenting unique developmental needs for young caregivers, a survey showed.

Youth spent an average of 5 hours a day providing care for their family member with ALS, handling an average of 12 tasks, including help with medications, respiratory equipment, and transferring in and out of bed, reported Melinda Kavanaugh, PhD, of the University of Wisconsin-Milwaukee, and co-authors in Neurology.

For complete article: https://www.medpagetoday.com/neurology/generalneurology/85542


Thanks

Alisa