Good morning,
I was reviewing this email and wanted to know where would an ALS patient obtain a “gray pillow switch”? Is this something that can be an out of pocket expense to the patient and family or does it require a physician’s order for a technician
to install?
I’m a Care Services Manager for LA/MS Chapters and we are often asked about some type of call system. If you could provide a more information that would be helpful.
Looking for other options for our PALS/CALS.
Thanks
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Natalie Thomas, LMSW |
Care Services Manager
The ALS Association LA/MS
Office
225-343-9880 Ext 3
email xxxxxx@alsalams.org
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From: xxxxxx@alsa.simplelists.com <xxxxxx@alsa.simplelists.com>
On Behalf Of Margaret Cotts
Sent: Monday, July 26, 2021 5:02 PM
To: xxxxxx@alsa.simplelists.com
Subject: Re: technology assistance needed
If a switch assessment is provided, make sure to try out large switches that are activated by gross movements.
I had a lot of success using the gray pillow switch for clients who were in bed. (I had one client who had the pillow switch pinned to his shirt with his wrist on top of
it, another who had it pinned to the side of his shirt, so it could be activated by squeezing his arm to his body, a third who had the switch velcroed to the foot of the bed, and activated it her toe.
Margaret Cotts
Low Tech Solutions.
On Monday, July 26, 2021, 02:50:05 PM PDT, Edward Hitchcock <xxxxxx@sralab.org> wrote:
I would agree with switch assessment for emergency call system. If she can talk, she probably can operate a chin switch? But likely less obtrusive places.
That being said, has she had an AAC evaluation? A comm device mounted where she can use it overnight may have several advantages, and could look at things like wake on gaze from Tobii...
Edward Hitchcock
Occupational Therapist
355 E. Erie St, Chicago, IL 60611
312-238-1000 office
312-238-0000 fax
xxxxxx@sralab.org
sralab.org
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From:
xxxxxx@alsa.simplelists.com <xxxxxx@alsa.simplelists.com> on behalf of Margaret Cotts <xxxxxx@pacbell.net>
Sent: Monday, July 26, 2021 4:43 PM
To: xxxxxx@alsa.simplelists.com
Subject: Re: technology assistance needed
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Hi-
I would want to be sure that a switch assessment had been provided, to rule out her ability to activate a switch adapted emergency alert system.
Margaret Cotts
Low Tech Solutions
On Monday, July 26, 2021, 02:27:55 PM PDT, Alisa Brownlee <xxxxxx@alsa-national.org> wrote:
Hello AT listservers,
Please see AT need below. Any ideas appreciated.
Thanks,
Alisa
Alisa Brownlee, ATP, CLIPP, CAPS, WSP | Assistive Technology Specialist/Consultant, Chapter Care Services
The ALS Association | 1300
Wilson Blvd., Suite 600 | Arlington, VA 22209 | als.org
Office: 215-631-1877 Cell: 215-485-3441
Email: xxxxxx@alsa-national.org
Twitter: @alsassistivetec
Facebook: Alisa Brownlee
ALS
This email and its contents are confidential. If you are not the intended recipient, please do not disclose or use
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On Jul 22, 2021, at 12:18 PM, Katrina Kepf <xxxxxx@alstn.org> wrote:
I am faced with a technology issue and a hoping you can help me solve it.
I have a pals whose husband is having heart issues. She is unable move her body to operate an alarm or to call 911 and Alexa is unable to understand her speech. She has a caregiver that arrives in the a.m. but is home with him alone in the evenings and throughout the night. Her fear is that he will have an incident or heart attack while they are in bed and she will not be able to call for help. She is looking for a medical alarm that is capable of monitoring his heart rhythm and notifying 911 if he needs help. I think she is fearful of something happening and him dying and her lying next to him all night until her morning caregiver arrives. An understandable fear. Have you ever needed something like this?
I have searched but have not found what I think would work.
Ideas? Suggestions?
Thanks for any guidance!
Katrina
Katrina Kepf, RN | Care Service Coordinator
The ALS Association Tennessee Chapter
783 Old Hickory Blvd, Suite 257, Brentwood TN 37027 | P.O. Box 40244 Nashville, Tennessee 37204
865-724-1717 | xxxxxx@alstn.org | www.alstn.org
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