Antionette, just curious if you have trialed the Responsable? Like you, I have tried a couple of the cheaper options and with one in particular, I got three in a row, and the first two were malfunctioning out of the box. But they were around $100 and were not from a company that I had heard of.
I have felt more comfortable with this system (responseable) given the higher price point and frankly what I would consider to be a more reliable company selling it. But wondered if anyone had any opinions about the relative reliability of it? Some of my clients consider the monthly fee of the lifeline to be cost prohibitive; especially if it will be a long-term solution. This is not usually a consideration for ALS but it has been for many of my other clients.
Ed Hitchcock OT/L
Technology Center
Rehabilitation Institute of Chicago
I would like to reiterate John's email that a monitored system is much preferred. There are a number of "emergency dialers" on the market, but I would not want to stake my life on them. After setting up a couple, I will no longer do them because I feel that it gives people a false sense of security. (It has been a while, but the ones I did would easily become unprogrammed and were easy to malfunction.)
As John said, the monitored systems do not automatically call 911, but if it were my family, I would want a human on the other end making sure help gets to the person or their family in need. People always think of emergency response for the person with the disability, but it is also needed so that the person with the disability could call for help for caregivers, if needed. I was at an ALS support group about a year ago discussing this issue, and two families had a situation where the person with ALS had to call for help for their caregivers!
As far as I am aware, Lifeline is the only monitored system that offers a switch adapted option.
Antoinette Verdone, MSBME, ATP
Owner, Rehabilitation Engineer
Address: 7301 Burnet Rd, Suite 102-265, Austin, TX 78757
DARS Provider# 1-274278960-0-000
"One cannot consent to creep when one has the impulse to soar" -- Helen Keller
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I have first hand personal experience with Life Line (not Life Alert) as I have been primary care provider for my mom in my home until her recent passing. When the alert button is pressed they do the following:
1. Call out to the recipient through the audio system provided to the house.
2. If no response OR if they can not get through (power outage and phone line is out OR someone picks up the landline after pressing the alert button) they then:
3. Call a designated number (I gave them my cell). If they don't get through, they then;
4. Call a second designated number (for me it was my office). If no success,
5. They call a third designated number (for me it was my next door neighbor)
6. If not response to any of those, they then will dispatch emergency personnel and then call the house (or the sequence of numbers outlined above) to confirm help arrived.
I can tell you from first hand experience, this sequence from calling the house to calling the emergency response happened in less than one minute (based on no answer to the first three calls).
Director, Augmentative Communication Program
Boston Children's Hospital
Do any of you have experience with the VTECH system? Patient was recently encouraged to pursue a life alert or emergency response system however her husband does not want emergency responders to be contacted by rather him first. System for something switch adapted that will contact him in emergency versus emergency responders?
Erin Singleton M.A., CCC-SLP
Neuroscience Outpatient Rehabilitation Center
2335 East Kashian Lane, Suite 301
Fresno, California 93701
Office: (559) 459-6056
Fax: (559) 459-2957
Email: xxxxxx@communitymedical.org
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