Hi Amy-

 

What a good idea!

 

I wanted to add one more thought… not sure if this belongs on your list, but I wanted to put it out there…It has to do with communication in specific locations/situations.

 

The main situation I’m thinking about is bedtime/night time, but other situations which fall under this category are bath-time,  and communication while in the car, etc.

 

I’m thinking of people who have good communication set-up during the day (for example a laser pointer and an SGD), but who can’t use these options in bed at night.

 

(In other words, as part of the assessment process, to make sure that the person has a way to communicate in the middle of the night.)

 

I have a little section on this on my website-

 

http://lowtechsolutions.org/pages/why/location.html

 

Thanks again,

 

Margaret

 

Margaret Cotts

Low Tech Solutions

 

 

From: xxxxxx@alsa.simplelists.com [mailto:xxxxxx@alsa.simplelists.com] On Behalf Of Amy Roman
Sent: Thursday, April 30, 2015 10:21 PM
To: National ALS Association AT Listserv
Subject: New Handout: Communication Checklist for People with ALS

 

Hi AT Listserv,

Here is a downloadable PDF checklist you can use in  support groups, therapy or provide to patients as a resource. The Communication Checklist describes 7 communication abilities that people with ALS should expect to have at all stages of disease progression.  Seven tangible goals are provided, for example "I can alert people in other rooms (or outside the home) when I have a need or emergency". These goals along with examples of how these goals can be met, included on the checklist, can help drive discussions that lead to solutions.    

For SLPs:    At the Forbes Norris ALS/MDA Research and Treatment Center, my clinical goals for patients are based on these 7 competencies which allow me to document my interventions and demonstrate progress on goals.  Speech therapists can take a  look  at the ALS Functional Communication Scale and Measurement Tool which generate G-Codes and are ideal for note templates.  

 

Sincerely,

Amy Roman, MS, CCC-SLP
Augmentative Communication Specialist

AmyandpALS.Com


Forbes Norris ALS Research and Treatment Center
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