Hi ,
Braingate2 is now recruiting at Stanford University in CA.  They are looking for spinal cord injury participants but if they find enough patients with ALS they are considering opening it up to this population.  Ed, I know this won't help in Chicago but I have been meaning to post this so thanks for reminding me.
 
http://www.braingate2.org/clinicalTrials.asp

Sincerely,

Amy Roman, MS, CCC-SLP
Augmentative Communication Specialist

Forbes Norris ALS Research Center
2324 Sacramento Street
San Francisco, CA 94115
P (415)518-0592
F (415)600-3778



CONFIDENTIAL OR PRIVILEGED: This communication contains information
intended only for the use of the individuals to whom it is addressed
and may contain information that is privileged, confidential or exempt from other disclosure under applicable law. If you are not the intended
recipient, you are notified that any disclosure, printing, copying,
distribution or use of the contents is prohibited. If you have
received this in error, please notify the sender immediately by telephone or by returning it by reply email and then permanently deleting the communication from your system.
Thank you.

--- On Thu, 9/13/12, Edward Hitchcock <xxxxxx@ric.org> wrote:

From: Edward Hitchcock <xxxxxx@ric.org>
Subject: [no phi] BCI- Current status for end-stage ALS
To: "RESNA's Assistive Technology Forum" <xxxxxx@LIST.RESNA.ORG>, xxxxxx@alsa.simplelists.com
Date: Thursday, September 13, 2012, 9:01 AM

Hi all, (sorry for crosspost). I am just trying to confirm that I am up
to date on current status of BCI for an end-stage ALS patient I am
working with. He is currently using eyeMax but his proficiency is
decreasing. His eye gaze is getting weaker and we are looking ahead to
alternative options. He is currently ventilator dependent.

I am encouraging use of low technology boards etc. We are going to try a
piezoelectric switch at his forehead. Beyond that, I wanted to make sure
I was up to date on what is currently out there for BCI. Are there other
things I should be considering?

I will probably reach out to Helen Hayes Hospital to see if there is any
way to trial a P 300.  To my knowledge this seemed to be the most
reliable noninvasive option and I know they had a trial version
available a few years back.



P300-per website, not currently available for trial outside of the area
of upstate New York. (We are in Chicago)

Emotiv- http://emotiv.com/index.php - I have not had great experience
with this.

EMG at larynx -using Audeo technology. I do not think this is really
available and doubt that it will work with this client due to lack of
activity at the larynx.

Cyberlink-may consider trial, but since it does not integrate
communication software to my knowledge and I have always had a hard time
eliciting the pure "brainwave" independent of eye movement or EMG at
forehead.

Neuro switch EMG- I am willing to consider EMG, but would prefer to move
past to brainwave stuff at this point.

Braingate- as far as I know, only trials available for ALS are in
Boston?



Are there other systems I should be considering? Thanks for any input,
Ed.

Ed Hitchcock OT/L
Technology Center
Rehabilitation Institute of Chicago
Confidentiality Notice: This message and any attachments are only for the intended recipient(s) and may contain confidential, privileged and/or protected health information.  If you are not the intended recipient of this message, please: 1) be advised that unauthorized review, use, copying, disclosure, or distribution is strictly prohibited and may be unlawful; 2) notify the sender of the delivery by reply e-mail or contact RIC's Privacy Officer at 312.238.0766 or xxxxxx@ric.org; and 3) delete and destroy all copies of the message and its attachments. Thank you.