Hi Listserv,

I know this isn't an AT question but we have a good number of SLPs/OTs and others on this listerv who specialize in working with people with ALS who I imagine will be best able to respond.  Please forgive my digression. 

Does anyone have any stretches, massages or other treatment  that they recommend to prevent or treat trismus (tightness of jaw muscle causing difficulty with opening mouth)?  I'd love any pictures, video links, descriptions, opinions, handouts, or thoughts.  I know we don't have a body of research on this topic to fall back on, but I have proceeded in my practice under the belief that we may help preserve the range of movement with gentle stretch and massage.  

I would love to know what others do or think about his.  Feel free to respond to me directly at xxxxxx@amyandpals.com but I think others may be interested in this topic too.  Trismus resulting in cheek, lip and tongue biting, teeth grinding, biting reflex interfering with oral hygiene, and exacerbated TMJ is a big issue for many people with ALS.