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-------- Original Message --------
Subject: 2016 ALS Clinical Conference -- Save the Date!
From: Alisa Brownlee <xxxxxx@alsa-national.org>
Date: Wed, March 09, 2016 11:35 am
To: at listserv <xxxxxx@alsa.simplelists.com>

Save the Date! National Clinical Conference

The ALS Association’s 2016 National Clinical Conference will be held November 1-4 at the Hyatt Regency La Jolla in San Diego, California. The current plans call for Association staff events on November 1st and 2nd, with a full, multi-track clinical conference November 3rd and 4th. The planning committee will begin meeting in March and additional information will be forthcoming.

Suggested speaker topics include but are not limited to:

The Disease

Newcomers Introduction to ALS and the association (ALS 101)

Physical Activity for People with ALS

Genetics in ALS

 

Research & Clinical Trials

Clinical Trials in ALS-past, present and future

ALS Untangled

Update on National Registry

Clinical Management

Nutrition/Peg Placement

Management of Pulmonary Care in the Early and Late Stages of ALS

Genetics: Implications for people with ALS and their families

Introducing Palliative Care and Hospice Services

FTD issues, cognitive and behavioral issues

Respiratory – the decisions along the journey

Symptom Management for nurses

Driving issues

Psycho-social issues in ALS

Communication issues in ALS

DX's of PLS, PBP, PMA in Clinic

"Protecting" those with ALS from incorrect DX's and associated treatments

 

Social Service Programs

Young Children and Teens

Meeting Caregivers Needs

Spirituality and ALS

Advanced planning

 

Insurance & Financial Resources

Financial Issues: Current & Potential health and Life Insurance Resources

Medicare Funding for AAC

Updates on Medicare changes (e.g. OT, PT, SLP)

 

Supporting Professional Caregivers

Preventing Professional Burnout

Energize & Revitalize – Remaining Positive at Work

Compassion Fatigue

Alisa Brownlee, ATP, CAPS

Assistive Technology Specialist

ALS Association, National Office and Greater Philadelphia Chapter

Work: 215-631-1877

Cell: 610-812-0361

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