The author of this article is a PhD who is also a person with ALS. Good article about empowerment.
Join the Cause: How to become an advocate for yourself and others:
http://journals.lww.com/neurologynow/Fulltext/2011/07050/Join_the_Cause__How_to_become_an_advocate_for.16.aspx
Alisa Brownlee, ATP
Clinical Manager, Assistive Technology Services
Follow me on Twitter @alsassistivetec
or visit my blog on assistive technology for people with ALS: http://alsassistivetechnology.blogspot.com
Direct phone number 215-631-1877