Thanks, this is really valuable info for me to share with the family.

 

Antoinette Verdone, ATP

Assistive Technology Specialist

ALS Association, Greater New York Chapter

116 John Street, Suite 1304

New York, NY 10038

Phone: 212-720-3054

Fax: 212-619-7409

xxxxxx@xxxxxxxxxx

 

"One cannot consent to creep when one has the impulse to soar." -- Helen Keller


From: xxxxxx@xxxxxxxxxxxxxxxxxxxx [mailto:xxxxxx@xxxxxxxxxxxxxxxxxxxx] On Behalf Of Edward Hitchcock
Sent: Friday, December 07, 2007 11:04 AM
To: xxxxxx@xxxxxxxxxxxxxxxxxxxx
Subject: RE: [Assistive Technology] Cyberlink Brainfingers

 

I have tried Cyberlink 3 times.  In fairness, the first time was an inappropriate referral for it.  Definitely did not work, but I knew that going in. 

 

Second time I felt like it should have worked but did not.  Tried getting EMG signals on an ALS client, but we were unsuccessful.  Yes/no with her was extremely difficult at that point so I do not have a real good feel for why we were unable to get EMG, seemed like a lot of interference, and we theorized that she was having fasciculation going on?  But that was just theory.  I tried having her go passively through some of the training features like the Mindmap (I may not have that name that right, the training where you go through what looks like a rollercoaster for anywhere up to an hour and try to control your responses.)  Did not appear to make any differences.

 

3rd time, tried with a TBI client with pretty severe ataxia, and it wound up working as an EMG switch with scanning software.  Did not significantly try with EEG due to cognitive deficits. 

 

I have tried with the EEG myself.  I find with a fair amount of effort towards relaxation, I was able to get the relaxation waves to come up.  I was also able to get the active brain waves to come up with a little less effort.  If I am sounding complicated there, that is right.  I had to spend a lot of time training and I would not say that I was anywhere approaching real control with the pure brainwave stuff.  In theory, I have trouble with the idea that if I need to communicate something urgent, that I would be able to relax my active thoughts.  (I NEED TO USE THE BATHROOM!!!  LIKE NOW!!!)  Then again, I am not exactly noted for my calmness and ability to center my thoughts to begin with…  For what it is worth…

 


From: xxxxxx@xxxxxxxxxxxxxxxxxxxx [mailto:xxxxxx@xxxxxxxxxxxxxxxxxxxx] On Behalf Of Antoinette Verdone
Sent: Friday, December 07, 2007 9:34 AM
To: xxxxxx@xxxxxxxxxxxxxxxxxxxx
Subject: [Assistive Technology] Cyberlink Brainfingers

 

Thanks for the feedback.

 

If anyone out there has used the EEG feature, I would like to hear if that was successful.

 

 

Antoinette Verdone, ATP

Assistive Technology Specialist

ALS Association, Greater New York Chapter

116 John Street, Suite 1304

New York, NY 10038

Phone: 212-720-3054

Fax: 212-619-7409

xxxxxx@xxxxxxxxxx

 

"One cannot consent to creep when one has the impulse to soar." -- Helen Keller