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I have some experience with ultravoice but with people
who
have had laryngectomies. One noted problem is volume. I have had 3 people
use
them and stopped because it was not loud enough. The other thing is they
have
to be able to turn the device on via switch. Also contrary to it being a
“natural
voice” it is basically an intra oral electrolarynx which also turned
off
my patients due to the sound. My thought would be an in line passy muir valve trial
first
and than electronic communication device such as you mentioned. If the
eyemax
did not work possibly an inferred/reflective control such as tracker pro
(http://www.madentec.com/products/tracker-pro.php.
Or (http://www.orin.com/access/headmouse/.) Just my thoughts Ron
Hankins
Speech
Language Pathologist Neuroscience
Clinics (602)
839-4150 xxxxxx@xxxxxxxxxxxxxxxx
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[mailto:xxxxxx@xxxxxxxxxxxxxxxxxxxx] On Behalf Of Edward Hitchcock I
got a phone call from an ALS client who was recently trached. For
reasons
I am not certain about, an eyemax trial failed and the family is interested
in
pursuing ultravoice, which I have no experience
with… http://www.ultravoice.com/professionals.htm
While
they cite that it works with ALS, I am concerned longer term about the
following statement about a vent dependent client they tried it
with “Except
for
the facial weakness, his speech musculature was
intact.” Since presumably this person already
has
or will develop dysarthria I am concerned about
that. But does anyone have direct
experience
with this for ALS that can share? Thanks,
Ed Ed Hitchcock
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