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Hello, My thought would be to contact
DynaVox
to inquire if they have any Representatives or connections in Ecuador who
can
assist the family with setting up an evaluation. Jessica M. Bianchi, MBA Care Coordinator Florida Chapter Home Office: The ALS Association Florida Chapter 888-257-1717 ext. 122 772-237-5251 fax You can join our ALS advocacy efforts. The actions of our
government have an enormous impact on ALS patients and their
families.
Click here to become an ALS
advocate today. This communication may contain privileged or confidential
information. If you receive this in error, please reply to sender and
immediately delete the message and any attachments without copying or
disclosing the contents. From:
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[mailto:xxxxxx@xxxxxxxxxxxxxxxxxxxx] On
Behalf Of lisa Hi
All, About
9 months ago we met a man from Ecuador who had traveled to the Cleveland
Clinic
for care related to his ALS diagnosis. At the time, he only needed
mobility equipment. Now,
the family is requesting communication device assistance for devices that
speak
Spanish. I referred them to Dynavox Spanish speaking devices/software
and
Tobii ATI, as well as all of the various free and low cost solutions for
Spanish speaking software/apps and also included information via email on
no
technology i.e., paper communication boards. Now
they are asking for a prescription from the Cleveland Clinic for a Dynavox
VMax
with eyes gaze communication device even though he has not had an
evaluation or
even seen the device. Actually, the email states that I recommended it,
even
though I did not. I recommended they get an evaluation and try the
device. The man has never used a computer or a typewriter so I have
some
concerns if he would even want to learn it or use it. I am not sure
how
insurance works in Ecuador—maybe the insurance company doesn’t
care
if he has an eval or not? So,
the question is… where can they go in South America (Ecuador) for a
communication device evaluation? I
see the International ALS/MND is in Peru. I suggested they call there for
referrals…. They thought that was too far away. (They said this
to
me while they were in Cleveland!!) I
also see ISAAC has NOTHING in South America. I
do not think he is well enough to travel to Cleveland or to Miami (where
his
son has a business office)… I
asked my Executive Director to fly me to Ecuador to do the eval, but I
don’t think that is in the budget this year. Hey, I
tried! Any
other suggestions? Lisa M. Bruening, M.S., CCC-SLP Patient Services Coordinator The ALS Association Northern Ohio Chapter phone: 216-592-2572 toll free: 888-592-2572 fax: 216-592-2575 Check
out our webpage: www.alsaohio.org Become
an ALSA Advocate! It's easy! Go
to our website and follow the tab for Public
Policy. Click on Advocacy Action
Center and
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