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Christine, There was a lot of discussion among us
about
a year ago about the audeo. I do not have any first hand experience,
but
suffice to say that you should tread lightly. Also, patient’s
families should be very wary of anyone asking them to pay out of pocket for
an
unproven device. From what I understand, the device is reading EMG
(muscle) movement – regardless of what their website says. We
all
know that ALS affects the muscles, so this device should be approached with
a
HEALTHY dose of objective investigation. I know that Joy Meacham of the St.
Louis
Chapter and Betts Peters of the Evergreen Chapter have had actual
conversations
with the company and/or patients who have tried it. You may want to
talk
to them for more specifics. Antoinette Verdone, MSBME,
ATP Assistive Technology
Specialist The ALS Association, Greater
42 Broadway, Phone: 212-720-3054 Fax: 212-619-7409 Email: xxxxxx@xxxxxxxxxx "One cannot consent to creep when
one
has the impulse to soar" -- Helen
Keller From:
xxxxxx@xxxxxxxxxxxxxxxxxxxx
[mailto:xxxxxx@xxxxxxxxxxxxxxxxxxxx] On Behalf Of Christine Bright The spouse of an
ALS
patient in Thank you. Christine Bright, MSW |