Hello
all,
I have a question for the group. Our Chapter is appling
for a
multi-year grant and one of the items is getting a outcomes measurement
tool in
place. This would have to be applied to our AAC program which means
capturing outcome data from assessments, training, follow up, useage,
etc...
I was wondering if anyone in the group has used outcome
measurements for the ALS population. Our PALS are in a very unique
category
when it comes to usage of assistive technology. With other diagnoses,
like
CP or stroke, users have
rehab goals to meet with their assistive
technology. Their outcomes can be tracked by how they achieved
these
goals.
Our patients do not have rehab goals because we are not in the
business of rehab--unfortunately our patients die. Capturing what
they are
using their communication device for is extremely difficult and often
relies on
caregivers responding for the patient. (sometimes after their death
which tends to change their thoughts or responses)
I know some researchers have gathered info specific to ALS
in terms of outcomes, but does anyone in the group have a
practical hands-on outcome tool for AAC?
Many thanks,
Alisa
Alisa Brownlee, ATP
Assistive Technology Specialist
ALS Association, Greater Philadelphia
Chapter
Assistive Technology Consultant, ALS Association,
National
Office
Direct Phone:
215-631-1877