Hey Alisa –
I have heard similar comments from
several
of our ALS patients. The technology sounds exciting but I am
concerned that
their claims may be misleading. To that end, I have emailed the folks
at
The Audeo requesting additional information. Thus far, I have
received one email back – it is attached.
Supposedly, it will be available to a
limited number of ALS patients in the Keep me in the loop and I’ll be
sure
to do the same! Amy Amy Wright,
MCD,
CCC-SLP Speech
Therapy
Coordinator Carolinas
Neuromuscular/ (704)
355-0867 From:
xxxxxx@xxxxxxxxxxxxxxxxxxxx
[mailto:xxxxxx@xxxxxxxxxxxxxxxxxxxx] On Behalf Of Alisa Brownlee
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Dear Amy:
Thank you for interest in the Audeo. We appreciate your time in helping us find the best solutions for furthering our public service missions. It is very important to our researach and development that we hear from as many people as possible regarding the various applications.
Currently, we are still in in the development phase for the Audeo communication device specifically for ALS patients. Right now we are limited to patient testing with those located close to us (we are located in Urbana, Illinois). The product is scheduled for national availability to health care professionals by the end of this year with public purchasing following soon after in early 2009.
Due to limited resources while we expand our team and site we cannot commit to all testing requests. There is no formula we use in selecting those for testing. If we think you would be a good candidate and you can make it to our site reasonably, we will contact you for testing. The test lasts about one hour and is for research purposes only.
We appreciate your time and efforts for wanting to work with us. Regardless of whether you are selected for testing, we will try to keep you as updated as possible for when and where the device will be available in your area.
Please don't hesitate to let us know if you have any questions. Also, if you have information that you think could help development (certain characteristics of your condition and others you know, etc.) please send us a detailed email with those thoughts and suggestions. We truly appreciate all the help from patients and caregivers that we can.
Your information will automatically enter our database so we can inform you of any important changes and upcoming launches. You can also visit our website at www.theaudeo.com for the lastest news.
Thank you,
Kimberly