Please remove Patty from your list and add Jodi Bales OTR/L Thank you,
Jodi Bales OTR/L Clinical Supervisor Forbes Norris MDA/ALS Research Center 2324 Sacramento St. #150 San Francisco, CA 94115 415-600-1262
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Joy,
In response to your second question, I’ve copied a portion of a communication I had with the Maine Center on Deafness. They were trying to find something of that nature for one of our pALS. I contacted another pALS who I knew had something that seemed to work well for him when he was still doing well enough to be left alone.
The phone he has is attached to a box. His wife says that the phone is a Panasonic Advance ITS. Because it’s attached to the box beneath it, she can’t see if there is a model number. The box has the following printed on it:
Able-Phone Model # 700VA Voice activated
She says the phone and box look as if they were intended to go together. The box has a power on/off switch, external microphone jack, whistle sensitivity setting, external switch, local control, and voice answer on/off.
The box can be turned on and left on by a caregiver, apparently indefinitely. The patient can activate it by whistling and then I believe, verbally state the number and message. I don’t think he has to give the whole number as I believe she said it’s programmed in. To hang up, he whistles again.
Nell
_____ Nell Davies, RN,
MPH Confidentiality
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