I took a Motor Speech Disorders continuing education from Jay Rosenbek in 2009, and he said that they frequently fit patients with ALS with palatal lifts.

 

Karen L. Smith, MS/CCC-SLP
Speech Language Pathologist

 

Hours:  Mon, Tues, Thursday 9-5:30

Portland Providence Medical Center-Plaza

5050 NE Hoyt #156

Portland, OR 97213

Phone: 503-215-1665

Fax:  503-215-6485

 

From: xxxxxx@xxxxxxxxxxxxxxxxxxxx [mailto:xxxxxx@xxxxxxxxxxxxxxxxxxxx] On Behalf Of Betts Peters
Sent: Tuesday, August 09, 2011 12:42 PM
To: xxxxxx@xxxxxxxxxxxxxxxxxxxx
Subject: more info and questions about palatal lifts

 

I did some research on palatal lifts for our clinic a few months ago.  We got a list of dental prosthodontists from another SLP who works with the head & neck cancer population.  However, we have not actually had any PALS actually go through with the process.  Part of that is because there are few PALS who seem to be appropriate for them (see list of recommended patient attributes below), and part of it is because of the cost.  When I contacted the local prosthodontists, they said that Medicare will cover it, but that Medicare reimbursement is less than what it costs the prosthodontist to make the prosthesis.  That means that none of our local prosthodontists will bother billing Medicare, and the patient cannot get reimbursed if they pay out of pocket.  Our state’s version of Medicaid won’t cover palatal lifts, and private insurance coverage varies widely, as usual.  The cost is $3000-5000.

 

If anyone’s interested, I found this list of patient attributes favorable for benefiting from a palatal lift in Motor Speech Disorders by Joseph Duffy:

·         Slow rate of progression

·         Adequate respiratory function and articulation

·         Resonance change with occlusion

·         Evidence of lateral pharyngeal wall movement during speech

·         Pressure sounds less adequate than others

·         No hyperactive gag reflex

·         No significant spasticity

·         Adequate swallowing & saliva management

·         Adequate dentition

·         Able to insert and remove prosthesis without assistance

 

I would be very interested to hear the experiences of anyone who has experience working with PALS and palatal lifts.  If you recommend them at your clinic or practice, how do you determine which PALS should get them?  Are your criteria similar to those listed above?  How are PALS getting funding for these prostheses?  What kind of feedback do you get from PALS that have them?  Thanks!

 

Betts Peters, MA, CCC-SLP

Assistive Technology Services Coordinator

The ALS Association Oregon and SW Washington Chapter

700 NE Multnomah St, Suite 870

Portland, OR 97232

503-238-5559

800-681-9851

Fax: 503-296-5590

Website: www.alsa-or.org

 

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From: xxxxxx@xxxxxxxxxxxxxxxxxxxx [mailto:xxxxxx@xxxxxxxxxxxxxxxxxxxx] On Behalf Of Tara Klucker
Sent: Tuesday, August 09, 2011 11:48 AM
To: xxxxxx@xxxxxxxxxxxxxxxxxxxx
Subject: RE:

 

I have had someone recently ask me about a lift, also.  I have asked our local SLP, and got a resource in St. Louis, but looking for someone much closer to the Bloomington area.  Does anyone know how to go about finding someone that can do this?  This is a  first for me.

 

Tara Klucker, MA, CRC, LPC
Case Manager and Outreach Specialist
The ALS Association, St. Louis Regional Chapter
 
314-432-7257 ext. 7
1-888-873-8539
 
Where Patients Matter Most
 
The information transmitted (including attachments) is covered by the Electronic Communications Privacy Act, 18 U.S.C. 2510-2521, is intended only for the person(s) or entity/entities to which it is addressed and may contain confidential and/or privileged material. Any review, retransmission, dissemination or other use of, or taking of any action in reliance upon, this information by persons or entities other than the intended recipient(s) is prohibited. If you received this in error, please contact the sender and delete the material from any computer.

 

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From: xxxxxx@xxxxxxxxxxxxxxxxxxxx [mailto:xxxxxx@xxxxxxxxxxxxxxxxxxxx] On Behalf Of Erin Singleton
Sent: Tuesday, August 09, 2011 1:50 PM
To: xxxxxx@xxxxxxxxxxxxxxxxxxxx
Subject: RE:

 

Thanks Tami

 

Do other SLP’s regularly suggest lifts for ALS patient’s? I have been trying to find someone in my area that does them in the event that it’s appropriate.

 

Erin

 

From: xxxxxx@xxxxxxxxxxxxxxxxxxxx [mailto:xxxxxx@xxxxxxxxxxxxxxxxxxxx] On Behalf Of Tami Brancamp
Sent: Tuesday, August 09, 2011 11:40 AM
To: xxxxxx@xxxxxxxxxxxxxxxxxxxx
Subject: Re:

 

They could be assessed for a palatal lift.

Tami

 

Tami Brancamp, PhD

Assistant Professor

Speech Pathology & Audiology

University of Nevada School of Medicine

775.784.4887

775.682.7020 (office)

 

On Aug 9, 2011, at 11:33 AM, Erin Singleton wrote:

 

Hey everyone,

 

I realize we typically focus on augmentative communication on this list serve so it may not be the most appropriate forum for this question.

 

I have had two ALS patient’s ask me this week about what they should do for nasal regurgitation when swallowing liquids. I don’t get asked this a lot so I don’t feel as though I have the best suggestions for them. The two men that asked are brothers and oddly enough have almost no pharyngeal dysphagia. Their most frustrating symptom is nasal regurgitation. It surprises me that it’s happening so often for them because their speech is only slightly nasal. If anyone has suggestions for me I’d love the advice!

 

If it’s easier to answer off the listserv my email is xxxxxx@xxxxxxxxxxxxxxxxxxxx

 

Thanks so much.

 

Erin Singleton M.A., CCC-SLP 
Neuroscience Outpatient Rehabilitation Center 
2335 East Kashian Lane, Suite 301 
Fresno, California 93701 
Office: (559) 459-6056 
Fax: (559) 459-2957 
Email: xxxxxx@xxxxxxxxxxxxxxxxxxxx

 

 

 

 

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