I took a Motor Speech
Disorders continuing education from Jay Rosenbek in 2009, and he said that
they frequently fit patients with ALS with palatal lifts.
Karen L. Smith, MS/CCC-SLP Hours: Mon, Tues,
Thursday 9-5:30 Portland Providence Medical
Center-Plaza 5050 NE Hoyt
#156 Portland, OR
97213 Phone:
503-215-1665 Fax:
503-215-6485 From:
xxxxxx@xxxxxxxxxxxxxxxxxxxx
[mailto:xxxxxx@xxxxxxxxxxxxxxxxxxxx]
On Behalf Of Betts Peters I did some research on
palatal lifts for our clinic a few months ago. We got a list of
dental prosthodontists from another SLP who works with the head & neck
cancer population. However, we have not actually had any PALS
actually go through with the process. Part of that is because there
are few PALS who seem to be appropriate for them (see list of recommended
patient attributes below), and part of it is because
of the cost. When I contacted the local prosthodontists, they said
that Medicare will cover it, but that Medicare reimbursement is less than
what it costs the prosthodontist to make the prosthesis. That means
that none of our local prosthodontists will bother
billing Medicare, and the patient cannot get reimbursed if they pay out of
pocket. Our state’s version of Medicaid won’t cover
palatal lifts, and private insurance coverage varies widely, as
usual. The cost is $3000-5000. If anyone’s
interested, I found this list of patient attributes favorable for
benefiting from a palatal lift in
Motor Speech Disorders by Joseph Duffy: ·
Slow rate of
progression ·
Adequate respiratory
function and articulation ·
Resonance change with
occlusion ·
Evidence of lateral
pharyngeal wall movement during speech ·
Pressure sounds less
adequate than others ·
No hyperactive gag
reflex ·
No significant
spasticity ·
Adequate swallowing &
saliva management ·
Adequate
dentition ·
Able to insert and remove
prosthesis without assistance I would be very interested
to hear the experiences of anyone who has experience working with PALS and
palatal lifts. If you recommend them at your clinic or
practice, how do you determine which PALS should get them? Are your
criteria similar to those listed above? How are PALS getting funding
for these prostheses? What kind of feedback do you get from PALS that
have them? Thanks! Betts Peters, MA,
CCC-SLP Assistive Technology
Services Coordinator The ALS Association Oregon
and SW Washington Chapter 700 NE Multnomah St, Suite
870 Portland, OR
97232 503-238-5559 800-681-9851 Fax:
503-296-5590 Website:
www.alsa-or.org Find our chapter
on
Facebook!
Register
TODAY
to join the Walk to Defeat
ALS®. Participate because YOU CAN! From:
xxxxxx@xxxxxxxxxxxxxxxxxxxx
[mailto:xxxxxx@xxxxxxxxxxxxxxxxxxxx]
On Behalf Of Tara Klucker I
have had someone recently ask me about a lift, also. I have asked our
local SLP, and got a resource in St. Louis, but looking for someone much
closer to
the Bloomington area. Does anyone know how to go about finding
someone that can do this? This is a first for
me. Tara Klucker, MA, CRC, LPC From:
xxxxxx@xxxxxxxxxxxxxxxxxxxx
[mailto:xxxxxx@xxxxxxxxxxxxxxxxxxxx]
On Behalf Of Erin Singleton Thanks
Tami Do
other SLP’s regularly suggest lifts for ALS patient’s? I have
been trying to find someone in my area that does them in the event that
it’s appropriate. Erin From:
xxxxxx@xxxxxxxxxxxxxxxxxxxx
[mailto:xxxxxx@xxxxxxxxxxxxxxxxxxxx]
On Behalf Of Tami Brancamp They could be assessed for a palatal
lift. Tami Tami Brancamp, PhD Assistant
Professor Speech
Pathology & Audiology University
of Nevada School of Medicine 775.784.4887 775.682.7020
(office) On Aug 9, 2011, at 11:33 AM, Erin Singleton
wrote: Hey
everyone, I
realize we typically focus on augmentative communication on this list serve
so it may not be the most appropriate forum for this
question. I
have had two ALS patient’s ask me this week about what they should do
for nasal regurgitation when swallowing liquids. I don’t get asked
this a lot so I don’t feel as though
I have the best suggestions for them. The two men that asked are brothers
and oddly enough have almost no pharyngeal dysphagia. Their most
frustrating symptom is nasal regurgitation. It surprises me that it’s
happening so often for them because their speech
is only slightly nasal. If anyone has suggestions for me I’d love
the advice! If
it’s easier to answer off the listserv my email is xxxxxx@xxxxxxxxxxxxxxxxxxxx Thanks
so much. Erin
Singleton M.A., CCC-SLP ________________________________
------------------------------------------------------- This message is intended for the sole use of the addressee, and may contain information that is privileged, confidential and exempt from disclosure under applicable law. If you are not the addressee you are hereby notified that you may not use, copy, disclose, or distribute to anyone the message or any information contained in the message. If you have received this message in error, please immediately advise the sender by reply email and delete this message. |