There is a MDA-ALS Chapter in Erie.  Go to the MDA website and enter the zip code to get the contact for assistance.  They have helped others access specialists in AAC in the area.

 

We refer everyone from Erie with ALS to them.

 

If a Veteran, then the contact is the VA at Wade Park in Cleveland.  Let me know if you need more information about the VA contact.

 

Good luck.

 

 

Lisa M. Bruening, M.S., CCC-SLP

Patient Services Coordinator

The ALS Association

Northern Ohio Chapter

phone: 216-592-2572

toll free:  888-592-2572

fax:  216-592-2575

 

Check out our webpage:  www.alsaohio.org

 

As of October 19, 2010 every person living with ALS in the United States can self-enroll in the National ALS Registry! 

How to get to the National ALS Registry http://www.cdc.gov/als

 

Become an ALSA Advocate!  It's easy! 

Go to our website and follow the tab for Public Policy. Click on Advocacy Action Center and sign up today!

 

Where Patients Matter Most

From: xxxxxx@xxxxxxxxxxxxxxxxxxxx [mailto:xxxxxx@xxxxxxxxxxxxxxxxxxxx] On Behalf Of Edward Hitchcock
Sent: Thursday, February 23, 2012 3:10 PM
To: RESNA's Assistive Technology Forum; xxxxxx@xxxxxxxxxxxxxxxxxxxx
Subject: [no phi] AAC specialist for ALS case- Erie PA

 

Hi, putting out a call for a friend of a friend.  Diagnosis of ALS, and trying to ID resources for AAC in Erie PA.  Google maps shows it being about even distance from Pittsburgh, Cleveland and Buffalo. 

 

Will need access eval as well as Text to speech options. 

 

Can you contact me off list if needed with any suggestions of contacts for her?  Thanks , Ed.

 

PS, sorry for cross post.

 

Ed Hitchcock OT/L

Technology Center

Rehabilitation Institute of Chicago

312-238-2997

xxxxxx@xxxxxxx

 

Confidentiality Notice: This message and any attachments are only for the intended recipient(s) and may contain confidential, privileged and/or protected health information.  If you are not the intended recipient of this message, please: 1) be advised that unauthorized review, use, copying, disclosure, or distribution is strictly prohibited and may be unlawful; 2) notify the sender of the delivery by reply e-mail or contact RIC's Privacy Officer at 312.238.0766 or xxxxxx@xxxxxxx; and 3) delete and destroy all copies of the message and its attachments. Thank you.