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-------- Original Message --------
Subject: RE: Seeking help...again
From: Beth Barrett <xxxxxx@xxxxxxxxxxx>
Date: Thu, January 12, 2012 10:44 am
To: "xxxxxx@xxxxxxxxxxxxxxxxxxxx" <xxxxxx@xxxxxxxxxxxxxxxxxxxx>

The coordinator of the support group needs to provide an interpreter and the rules of the group need to be that one person speaks at a time.

 

 

Mary C. Riggs, MS,. CRC, LPC

Director of Care Services and Chapter Programs

The ALS Association, St. Louis Regional Chapter

Where Patients Matter Most

 

Fax:  314-432-2991

Phone: 888-873-8539

 

 

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From: xxxxxx@xxxxxxxxxxxxxxxxxxxx [mailto:xxxxxx@xxxxxxxxxxxxxxxxxxxx] On Behalf Of Alisa Brownlee
Sent: Thursday, January 12, 2012 11:03 AM
To: National ALS Association AT Listserv
Subject: Seeking help...again

 

To my assistive techology "peeps", I need your assistance again.  This note is from the brother of a person with ALS and I could really use some thoughts, cause I don't specialize in hearing/deaf related issues.  Any feedback appreciated.

 

 

I need some help for my sister in law.  She is deaf in both ears and wears hearing aids.  She finally went to a support group and guess what?  She can't hear what they are saying so therefore can't take notes or participate at all.  This is upsetting to her.  I wonder if you ever had a problem like this in all the time you have been doing this.  I recommended the head person wear a head mike but she said that would be fine but when others speak, she can't hear them either.  She can hear you or me face to face but in a big room with other noises its impossible.  I can't believe this happened to her.  I feel very bad she cannot enjoy the company of others because of her hearing.  Do you have any advice about this?  Even if the entire group was audio taped she can't respond or ask questions until the next months meeting.

 

 

 

Alisa Brownlee, ATP
Clinical Manager, Assistive Technology Services

Follow me on Twitter @alsassistivetec
or visit my blog on assistive technology for people with ALS: http://alsassistivetechnology.blogspot.com

Direct phone number 215-631-1877