The following is a link to a story about Mike McGinn, at PALS living in the Philadelphia area that was interviewed by NBC10 about his disease but focusing on the device that has given him his "voice" back--his iPad.  Wonderful story!
(scroll down half way on the page to see the story--called "He Speaks Again"
 
http://www.nbcphiladelphia.com/on-air/community/He_Speaks_Again_Philadelphia-128474173.html
 
Thanks,
Alisa
 
Alisa Brownlee, ATP
Clinical Manager, Assistive Technology Services
ALS (Lou Gehrig's Disease) Association National Office
 and Greater Philadelphia Chapter
Direct Phone: 215-631-1877