People do find the Jay Union hard after a while. Sometimes a Comfort Company M2 or Acta Embrace, or Matrix VI if we want a more basic cushion. If needing a hybrid for pressure relief but the firmer front with transfers, then the Roho Hybrid Elite, Jay Fusion air or gel or the like. Some people need the Roho Quadtro or Jay 2 deep contour later, but don’t want it initially. We’ve had good luck in a couple cases with tailbone pain with the Ride Designs Java.

Really though, a $10,000 cushion can still be pressure. I think we all need to be MUCH better about strongly encouraging regular pressure relief. Especially if we deliver the chair and do the education when they are still standing. When they can’t stand any longer, they are not in the routine of tilt/recline for pressure relief. Also, some people won’t tilt because they cannot breathe, but don’t want the Trilogy/BiPAP during the day. We have been doing a ton of sip-and-puff options for the Trilogy.

Amber L. Ward, MS, OTR/L, BCPR, ATP/SMS

Occupational Therapy Coordinator, Wheelchair/equipment evaluator

Adjunct professor Cabarrus College of Health Sciences

Carolinas Neuromuscular ALS/MDA Center

Neurosciences Institute Neurology- Charlotte

1010 Edgehill Rd North

Charlotte, NC 28207

704-355-0787- Office direct, 704-446-1900- Main building line, 704-446-6084- Fax

Atrium Health

Carolinas HealthCare System is Atrium Health

From: xxxxxx@alsa.simplelists.com [mailto:xxxxxx@alsa.simplelists.com] On Behalf Of Lisa Bruening
Sent: Thursday, March 01, 2018 2:40 PM
To: xxxxxx@alsa.simplelists.com
Subject: power wheelchair cushions

WARNING: This email originated from outside of Atrium Health (owner-at+amber.ward=xxxxxx@alsa.simplelists.com).

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Hello,

Asking for one of our wheelchair vendors...

Which power wheelchair cushion(s) is/are most frequently recommended for persons with ALS?

One of our vendors has been using the Jay Union cushion which has not been well tolerated and has been receiving many complaints.

The vendor asked me to survey the other Chapters and AT specialists on this list to see if there is any consensus of other options.

Thanks in advance.

Lisa

Did you know that The ALS Association Northern Ohio Chapter is totally self-funded and provides support to over 300 local persons with ALS and their family members each year? We count on YOUR support to provide caregiver breaks and grants to assist with the costs of care.

Lisa M. Bruening, M.S., CCC-SLP
Director of Care Services

Rockside Square, Building 1
6155 Rockside Road, Suite 403
Independence, OH 44131

Direct Dial: 216-867-1262
Phone: 216-592-2572 Fax: 216-592-2575
Toll-free: 888-592-2572
www.alsaohio.org

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