Read below please.  Excellent!

 

 

 

 

The ALS Association Central and Southern Ohio May 2013 Newsletter

 

http://webcsoh.alsa.org/site/DocServer/May_2013_ALS_Connection.pdf?docID=101526

Clay's article is on page 4

 

Finding the Best Speech Device

By Clay Lewis, pALS

Introduction:

I write this article in hopes that it can help others find the best speech device for them. I am 45 years old and was diagnosed with ALS 4 years ago. My symptoms began in my legs, moved into my arms, and eventually my speaking and swallowing. From the beginning of this disease, my wife and I have tried to "be prepared" prior to the moment of need. This is especially true for long lead-time items such as home modifications, power chair, handicap-accessible vehicle, and speech device. Having experienced each of these adaptations, I've found my speech device to be the most used. This had not been my expectation, and I want others to realize just how crucial the device is for PALS.

When and Where to begin:

You can begin learning on your own well before you notice any deterioration in speech by researching online. This will help you to become familiar with the terminology used, brand name products (Dynavox, FRS, Prentke Romich, Tobii), and available options for speech devices.

I did not investigate the iPad since my hand function was lost prior to speech and I'm not aware of alternative input methods. This lack of alternative input methods probably makes the iPad a short-term solution for most PALS. When you first notice a change in your speech, make an appointment with a speech therapist. This can be done through your neurologist, hopefully at an ALS clinic. During your first appointment with the speech therapist, I recommend addressing the following topics: your individual needs, current and future needs for an input method, device capabilities, criteria for comparing the various devices, letter of necessity, topics for insurance, and a date for the follow-up appointment to compare devices with the therapist. I suggest trying all different brands prior to and during this follow-up appointment.

Input methods include: touch screen, head mouse, and eye tracking.

Device capabilities include: speaking, e-mail, internet browsing, social media, e-reader, Infrared control (TV remote, home automation, etc), calendar, music player, picture albums, cell service connection, wi-fi, etc.

* Insurance may only cover speaking; you should ask the sales representative for fees to activate wireless and other capabilities not covered.

Examples of criteria include:

eye tracking accuracy, support availability, battery life, charging options (outlet, chair, vehicle), speed, spell checking, comfort with software navigation, word prediction, phrase customization, complete computer control, mouse control, device mounting options, etc.

Conclusion:

With research, demonstrations, and preparation, you will gain an invaluable tool for communication. You can avoid frustration for you and your caregiver by starting early in your preparation. Every person has individual needs and requirements. It is best to work with your neurologist's speech therapist to determine your options.

Since my selection:

My speech device (Tobii C-15) arrived in May 2012 and uses eye tracking for input. Since that time, I have become more dependent on it for simple communication with my caregiver, family, and friends. Beyond speaking, the device allows me to control the TV, share pictures, listen to music, read e-books, e-mail friends, text via e-mail, schedule reminders on a calendar, and browse the internet. Using the internet, I have been able to buy gifts, borrow e-books from library, complete personal taxes, read local newspaper online, listen to local high school football, medical equipment research, and keep contact with health insurance provider.

I also attend webinars online from ALSA and the speech device manufacturer. With information from the webinars, I have been able to customize the screens for efficiency and functionality, create a scientific calculator screen, and share others screens via a website. My device is in use every hour of my waking day and I don't know how I could do without!

Clay wrote and e-mailed this article using his Tobii speech device with eye-gaze access.

 

Sincerely,

 

 

Lisa M. Bruening, M.S., CCC-SLP

Director of Care Services

The ALS Association Northern Ohio

6155 Rockside Road, Suite 403

Independence, OH 44131

 

Direct: 216-867-1262

Chapter: 216-592-2572

Toll-Free: 888-592-2572