lime

Event

Speaker

Affiliation

11:00 a.m. — 1:00 p.m.

Registration

Avenue Hotel
Floor X, Room X

1:00 p.m. — 5:00 p.m.

Welcome — New Learners

Jennifer Armstrong, RN, MSN, MHA
(10 minutes)

Northwestern University
Lois Insolia ALS Center
Chicago, IL USA

Introduction to ALS/MND

Mark Ross, MD
(30 minutes)

Mayo Clinic
Scottsdale, AZ USA

Helping PALS to Digest Diagnosis

Mary Beth Geise, RN
(30 minutes)

ALS Care, Inc.
Greensboro, NC USA

To Exercise or Not to Exercise

Margaret McGovern-Denk, ^OTR/L
(30 minutes)

Northwestern University
Lois Insolia ALS Center
Chicago, IL USA

Orthotics for ALS

Gene Bernandoni, CO
(20 minutes)

Ballert Orthopedics
Chicago, IL USA

Early Nutrition Needs

Joyelle Temming, RD
(30 minutes)

Northwestern University
Lois Insolia ALS Center
Chicago, IL USA

Living with ALS: After the Diagnosis

Shari Diamond, RN
Laurie Fieldman, LCSW
Ileane Mindel, RN
Claire Owen, LPN
Judy Richman, RN
Easton Stevenson, LCSW
(60 minutes)

Les Turner ALS Foundation
Skokie, IL USA

Discussion Panel
(15 minutes)

5:30 p.m. — 7:00 p.m.

Welcome Reception
(Cocktails and Hors'Doerves)

Avenue Hotel
Floor X, Room X

Time

Event

Speaker

Affiliation

7:00 a.m. — 8:00 a.m.

Breakfast
(Continental)

Vendor Exhibitions Open

Northwestern Memorial Hospital
Conference Center
3rd Floor Feinberg Pavilion

8:00 a.m. — 12:00 p.m.

Opening Welcome Speakers

Les Turner ALS Foundation
ALS Association
MDA/ALS Division
(60 minutes)

State of ALS Care

Robert Sufit, MD
(40 minutes)

Northwestern University
Lois Insolia ALS Center
Chicago, IL USA

Break

Respiratory Care Update

Lisa Wolfe, MD
(90 minutes)

Northwestern University
Lois Insolia ALS Center
Chicago, IL USA

Discussion Panel
(15 minutes)

12:00 p.m. — 2:00 p.m.

Lunch

2:00 p.m. — 5:00 p.m.

Airway Clearance Devices

Nancy Linda, RN
John Powers, BS, RCP
(50 minutes)

Hill-Rom, The Vest
St Paul, MN USA

Strategies for Success with NIV

Kimberly Minton, BS, RRT
(20 minutes)

ResMed, Inc.
San Diego, CA USA

Break

Remote Respiratory Care

Sonya Wheeler RRT, CRE
(25 minutes)

Covenant Health- Misericordia Hospital
Edmonton, AB Canada

DPS Update:
Suprapubic Catheters

Cynthia Kaplan, RN
(20 minutes)

University Hospitals Case Medical Center
Cleveland, OH USA

Traveling with ALS

Mary Jo Elmo, CNP
(20 minutes)

University Hospitals Case Medical Center
Cleveland, OH USA

Discussion Panel
(15 minutes)

5:30 p.m. — 7:00 p.m.

Happy Hour Reception

Avenue Hotel
X Room

lime

Event

S peaker

Affiliation

7:00 a in — 8:00 a.m.

Breakfast
(Continental)

Vendor Exhibitions Open

Northwestern Memorial Hospital
Conference Center
3¹⁴ Floor Feinberg Pavilion

8:00 a.m. — 12:00 p.m.

Virtual Home Visits

Tony Cook, LPN
(30 minutes)

Greater Chicago Chapter
ALS Association
Chicago, IL USA

Cost of Care in ALS

Marcia Obermann, RN BSN HRM
(50 minutes)

Alabama Chapter
ALS Association
Huntsville, AL USA

Break

Patient Centered Restructuring of
ALS Multidisciplinary Clinic

Danielle Frey, PT, PhD
(30 minutes)

Fletcher Allen Health Care
University of Vermont
Burlington, VT USA

Cannabis in ALS

Gregory T. Carter, M.D, M.S.
(30 minutes)

Neuromuscular Center
Providence Medical Group
Olympia, WA USA

Evidence-based Nutrition
Practice Parameters

Karen Martin, MA,RD,LD
(30 minutes)

San Antonio, TX USA

Partnering with Hospices

Susan Whitacre; RD ______

(30 minutes)

University of Kansas Medical Center
Keith Worthington ALS Chapter
Mission, KS USA

12:00 p.m. — 1:30 p.m.

Lunch

1:30 p.m. — 5:00 p.m.

Communication —
Low and High Tech Options

Alisa Brownlee, ATP
(20 minutes)

ALS Association National Office
and Greater Philadelphia Chapter
Philadelphia, PA USA

Computer access options for ALS

Sara M. Feldman, PT, MA, DPT, ATP
(20 minutes)

MDA/ALS Center of Hope
Drexel University College of Medicine
Philadelphia, PA USA

Developing Best Practices for
Occupational Therapy in a
Multidisciplinary ALS Clinic

Amber L. Ward, MS, OTR/L, BCPR, ATP
(20 minutes)

Carolinas ALS Center
Charlotte, NC USA

Break

Three Dimensional Model of
ALS Clinic Care

Karen Cross MD
Theresa Johnston-Crews RN, BSN, MBA
Sue Humphries, SW
(30 minutes)

Wake Forest Health Sciences
Jim "Catfish" Hunter ALS Chapter
Raleigh, NC USA

Support for the Team

Renee S. Bricker M.S. CCC-SLP Clin 3
(30 minutes)

Richard R. Dart ALS Clinic
University of Virginia Health System
Charlottesville, VA

Sample ER Card

Patricia Wilkinson, RRT
(5 minutes)

Richard R. Dart ALS Clinic
University of Virginia Health System
Charlottesville, VA

Family Counseling Experiences

Laurie Fieldman, LCSW
(50 minutes)

Les Turner ALS Foundation
Skokie, IL USA

Discussion Panel
(15 minutes)

6:30 p.m. — 8:30 p.m.

Celebration Dinner

TBD

Time

Event

Speaker

Affiliation

8:00 a.m. — 9:00 a.m.

Breakfast
(Continental)

Northwestern Memorial Hospital
Conference Center
3'^d Floor Feinberg Pavilion

9:00 a.m. — 12:00 p.m.

Understanding Genetics
New C9orf72 Frontier

Nailah Siddique, RN, MSN
(50 minutes)

Northwestern University
Neuromuscular Laboratory
Chicago, IL USA

Preimplantation genetic
diagnosis (PGD) with
in vitro fertilization (IVF)

Lisa Kinsley, CGC
(30 minutes)

Northwestern University
Neuromuscular Laboratory
Chicago, IL USA

Understanding Clinical
Research

Patricia Casey, OTR/L, CCRC
(30 minutes)

Northwestern University
Lois Insolia ALS Center
Chicago, IL USA

Clinical Research Update

Dallas Forshew, RN
(50 minutes)

Forbes Norris MDA/ALS
Research Center
San Francisco, CA USA

Discussion Panel
(15 minutes)