Brain Control Interface?

 

 

Ben Lieman, ATP, MSW

Assistive Technology Specialist

The ALS Association Greater New York Chapter

42 Broadway, Suite 1724 New York, NY 10004

Direct: 212.720.3057 | Office: 212.619.1400

xxxxxx@als-ny.org / WWW.ALS-NY.org

 

From: xxxxxx@alsa.simplelists.com <xxxxxx@alsa.simplelists.com> On Behalf Of xxxxxx@improveability.com
Sent: Wednesday, September 5, 2018 9:30 AM
To: xxxxxx@alsa.simplelists.com
Subject: RE: Advice for locked in patient

 

Thanks James for the info.  I did find out that it is that he is not able to close his eyes and they are putting cream on his eyes.  What I do not know is how well he is doing with the current system, but this is something I can see when I visit.

 

Sincerely,

 

Antoinette Verdone, MSBME, ATP

Founder, Rehabilitation Technology Specialist

ImproveAbility, LLC

 

 

-------- Original Message --------
Subject: re: Advice for locked in patient
From: "James Brinton" <xxxxxx@eyegaze.com>
Date: Wed, September 05, 2018 7:50 am
To: <xxxxxx@alsa.simplelists.com>

Hi Antoinette,

 

I think the first step is to try and find out more specific details about the condition of his eyes and then see if any eyegaze devices might compensate for what is going on. If you find out more specific details, I know that Nancy Cleveland, Medical Director of LC Technologies, has 30+ years of working with difficult eye cases--she would be a great resource if anything can be done at all.  She can be reached at 1(800) EYEGAZE and does consultations with all sorts of complex eyeballs to find communication access, if still possible. 

 

James

 

James Brinton, M.A., CCC-SLP

Assistive Technology Coordinator

Speech-language Pathologist

LC Technologies, INC

Eye Tracking That Brings Power To Sight

10363 Democracy Lane

Fairfax, VA 22030

T: Image removed by sender.703-385-8800

F: 703-385-7137

 

 

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From: "Antoinette Verdone" <xxxxxx@improveability.com>
Sent: Tuesday, September 04, 2018 9:38 PM
To: xxxxxx@alsa.simplelists.com
Subject: Advice for locked in patient

 

Hello,

 

I have recently been made aware of an ALS patient. I have not personally met him yet, but this is what I have been told:

- computer programmer

- expert user of a Talk to Me Technologies eye gaze

- has no reliable physical movement

- is losing eye gaze access - not sure why but the report from the SLP is that he sometimes has patches on one eye or the other and he will change up which eye is tracked with the eye gaze - I assume that he may not be able to close his eyes and that is what is going on, but I am not sure. 

 

So, I am looking for any suggestions ideas on things we can try or what to consider for access when visiting with this client. 

 

I am concerned that because this client is such an expert eye gaze user, changing over to switch will not be acceptable to him. 

 

I do not have a lot of experience working with someone this far advanced that wants to maintain access to a device. So, and questions I should be asking or any other input is very welcome. 
 

Sincerely,

 

Antoinette Verdone, MSBME, ATP

Founder, Rehabilitation Technology Specialist

ImproveAbility, LLC

Office: 512-522-1705

Cell: 512-497-6026


"One cannot consent to creep when one has the impulse to soar" -- Helen Keller