Hi all,. Related to the ‘double dipping’ model we have launched in cooperation with Acapela, am sending you these link for voice created for three people with ALS who message banked. All used the Zoom recorder. One started with a .wav iphone app but then stopped after a few messages as she found that it took too much management.

We have a few who have done this now but so far I have permission from these three to share in video:

1. voice created from message banking for a man from Florida with mild Dysarthria at time of banking:

The first sentence is a novel sentence with his voice and when he viewed the video to give me permission to use, he wrote: “even though I never said it, it sounds alot like me and totally captures my humor”

https://youtu.be/aWIVt88yhmU

2 this is for a woman who comes to us from Virginia. She has a little bit of a southern accent and has mild flaccid dysarthria at time of banking

https://www.youtube.com/watch?v=RzYt22D4jU4

3 This is a woman from NYC who has mild to moderate Dysarthria at time or banking

https://youtu.be/X2Jakv9T8aU

All three followed our message banking approach and then files were uploaded to our mymessagebanking.com

Two are now having the SAPI code embedded in their newly acquired speech generating devices so they have both their custom Acapela voice AND all of their authentic message banked messages. Stay tuned for videos of people using both message bank and voice banking voice integrated into their SGD.

4. For those who did not hear the voice I created, here it is. It is a really good example of how we can do nice things with people who start really early, prior to obvious bulbar symptoms.

https://www.youtube.com/watch?v=zJJbLQbpPc4

Best,

John

John M. Costello

Director, Augmentative Communication Program and

ALS Augmentative Communication Program

Boston Children's Hospital

781.216.2220

781 216 2252 fax

www.childrenshospital.org/acp

www.childrenshospital.org/ALSaugcomm

FACEBOOK: www.facebook.org/acpchboston

TWITTER: ACP/ALS ACP

@costello_j

From: <xxxxxx@alsa.simplelists.com> on behalf of Carmel Caga-anan <xxxxxx@uw.edu>
Reply-To: "xxxxxx@alsa.simplelists.com" <xxxxxx@alsa.simplelists.com>
Date: Friday, November 16, 2018 at 11:10 AM
To: "xxxxxx@alsa.simplelists.com" <xxxxxx@alsa.simplelists.com>
Subject: Re: ASHA Convention Presentation [EXTERNAL]

Man, I wish I could be there too! I bet it'll be great 😊

Carmel

--
E. Carmel F. Caga-anan, MS CCC-SLP
Speech-Language Pathologist
University of Washington Medical Center
Vmail: (206) 598-6709
Pager: (206) 314-8147

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From: xxxxxx@alsa.simplelists.com <xxxxxx@alsa.simplelists.com> on behalf of Amy Lustig <xxxxxx@gmail.com>
Sent: Friday, November 16, 2018 8:00 AM
To: xxxxxx@alsa.simplelists.com
Subject: Re: ASHA Convention Presentation

I wish I could be at ASHA this year for your presentation -- it sounds wonderful -- hope it goes well!!!

On Fri, Nov 16, 2018 at 10:29 AM Antoinette Verdone <xxxxxx@improveability.com> wrote:

This sounds amazing!!! Wish I could be there. When will AlphaCore be available on Grid?

Sincerely,

Antoinette Verdone, MSBME, ATP

Founder, Rehabilitation Technology Specialist

ImproveAbility, LLC

Office/Text: 512-522-1705

Cell: 512-497-6026

Email: xxxxxx@improveability.com

Web: www.improveability.com

Fax: 888-501-1009

3310 W Braker Lane, Suite 300-424, Austin TX 78758

TWC/HHSC Provider# 1-274278960-0-000

"One cannot consent to creep when one has the impulse to soar" -- Helen Keller

Virus-free. www.avast.com

On Fri, Nov 16, 2018 at 9:21 AM Alisa Brownlee <xxxxxx@alsa-national.org> wrote:

Hi Everyone,

I wanted to give everyone a heads up that John Costello, Chris Gibbons, Trinity Deibert, Daisy Clay and I are providing a hands-on workshop called A Journey with ALS at the ASHA Convention this Saturday from 1:00-3:00 (session HL23). The Workshops/Labs are new this year and a little hard to find in some of the planners so I thought it might be good to let our AAC groups know about it.

Our workshop will be providing hands-on experience with the technologies we think are essential to pALS. Of particular interest this year, John will be showing us brand new advances in voice and message banking. You will learn how your clients can message and voice bank simultaneously. Chris will be making sure we all know how to install the messages our clients have recorded into their SGDs and even into iOS devices. I will be introducing a new AlphaCore page set that will come standard on Grid 3 and Grid for iPad that is specifically designed to meet the needs of your clients with ALS and other literate populations. You may also get a chance to try a device or access methods you have not gotten your hands on yet so be sure to join us if you can.

Sincerely,

Amy Roman, MS, CCC-SLP
Augmentative Communication Specialist

AmyandpALS.Com

Pinterest.com/AmyandpALS

Twitter.com/AmyandpALS

Forbes Norris ALS Research and Treatment Center
2324 Sacramento Street
San Francisco, CA 94115
Cell (415)518-0592
Fax (415)600-3778

Alisa Brownlee, ATP, CAPS | Assistive Technology Specialist/Consultant

The ALS Association | 1275 K Street NW, Suite 250

| Washington, D.C. 20005 | alsa.org

office 215-631-1877 | cell 215-485-3441

email xxxxxx@alsa-national.org

This email and its contents are confidential. If you are not the intended recipient, please do not disclose or use the information within this email or its attachments. If you have received this email in error, please delete it immediately. Thank you.

Amy Lustig, PhD, MPH, CCC-SLP
Restorative Speech & Swallow, LLC

Jenkintown, PA 19046
215-460-1150

xxxxxx@gmail.com