Re: Medicare Lockdown debnoel@xxxxxx 24 Jun 2014 20:33 UTC

Hi there,
There is a lot of personal info now about this family on the internet via
the exchanges below. I feel uncomfortable for them and think this is not
how we should be inquiring on our clients behalf. Did I misconstrue the
use of names, addresses, etc?
Deborah Bell, MA/CCC

> Tobii won't demo it because the price point does not allow room for tech
> support and consultant time.
>
> I had the opportunity to borrow one for a few days. It is easy to set up
> and learn, and is pretty easy to set up. I found it easy to navigate with
> the gaze selection mouse tools with just a little bit of practice. The
> same issues with glasses and positioning apply and it may be a little more
> if a challenge to position since it is not connected to a tablet with the
> mounting bracket like the speech device packages.
>
> When you purchase the PC eye go you have 30 days to return it if it
> doesn't work for you.
>
> There is a similar  product available through eye tech digital that would
> also be good to try.
>
> Sent from my iPhone
>
>> On Jun 24, 2014, at 3:54 PM, Alisa Brownlee
>> <xxxxxx@alsa-national.org> wrote:
>>
>> The writer below is a CALS.  Anyone want to offer insight?  I don’t
>> own a PC Eye yet…anyone that does want to offer an opinion?
>> Thanks
>>
>> Alisa
>>
>> Alisa Brownlee, ATP
>> Assistive Technology Specialist
>> ALS (Lou Gehrig’s Disease) Association, National Office and Greater
>> Philadelphia Chapter
>>
>> Follow me on Twitter: @alsassistivetec
>> Facebook: Alisa Brownlee ALS
>> Pinterest: Alisa Brownlee
>>
>> Mark your calendars!
>> RESNA 2015 Conference in Denver--June 10-14, 2015
>> Celebrating our 35th Anniversary as Leaders in Assistive Technology
>> www.resna.org
>>
>>
>>
>>
>> From: Laurie A. Murphy [mailto:xxxxxx@kmco.com]
>> Sent: Tuesday, June 24, 2014 3:43 PM
>> To: Alisa Brownlee
>> Subject: RE: Medicare Lockdown
>>
>> Alisa,
>>
>> How familiar are you with the PCEye Go used with a tablet?  I would like
>> to get some user feedback.   I don’t want Jim to be cut off with a
>> locked device and the PCEye Go seems like an option that we could
>> purchase without insurance.  The Tobii sales rep would not demo it for
>> us which makes me think there are limitations.   (I do know that battery
>> life is a drawback).  Do you have resources that could give us some
>> unbiased user information?
>>
>> Thanks
>>
>> Laurie
>>
>>
>> From: Alisa Brownlee [mailto:xxxxxx@alsa-national.org]
>> Sent: Thursday, June 19, 2014 8:49 AM
>> To: Laurie A. Murphy
>> Cc: Patrick Wildman
>> Subject: RE: Medicare Lockdown
>>
>> Hi Laurie,
>> Thank you for contacting me.
>>
>> Yes, indeed there is an effort in Washington DC to change the current
>> Medicare rules about Speech Generating Devices.  I would advise you to
>> contact Pat Wildman from our Public Policy Department (I have cc’d him
>> on this email) regarding the legislative efforts underway.
>>
>> You can also read more information here:
>> http://capwiz.com/alsa/issues/alert/?alertid=63170711&MC_plugin=2821
>>
>> Thank you!
>>
>> Regards,
>>
>> Alisa
>>
>> Alisa Brownlee, ATP
>> Assistive Technology Specialist
>> ALS (Lou Gehrig’s Disease) Association, National Office and Greater
>> Philadelphia Chapter
>>
>> Follow me on Twitter: @alsassistivetec
>> Facebook: Alisa Brownlee ALS
>> Pinterest: Alisa Brownlee
>>
>> Mark your calendars!
>> RESNA 2015 Conference in Denver--June 10-14, 2015
>> Celebrating our 35th Anniversary as Leaders in Assistive Technology
>> www.resna.org
>>
>>
>>
>>
>> From: Laurie A. Murphy [mailto:xxxxxx@kmco.com]
>> Sent: Wednesday, June 18, 2014 12:35 PM
>> To: Alisa Brownlee
>> Subject: Medicare Lockdown
>>
>> Alisa,
>>
>> My husband, who has ALS, is in the process of obtaining a new eyegaze
>> device.  His Tobii C-10 is not working and we are in the process of
>> evaluating options.
>>
>> I just became aware that this spring Medicare regulations changed and
>> Medicare will only lease locked devices (no internet access).  For
>> someone who is completely paralyzed, whose only means of communication
>> is his eyes, prohibiting access to the internet is an abomination.  We
>> are trying to work around this (his secondary insurance may pay for an
>> unlocked version or we will pay for it ourselves).   Fortunately we do
>> have the means to work around this, if need be.  However, I was
>> wondering if there are any efforts by ALSA or other groups to get public
>> awareness of this problem.    For those who do not have the means, who
>> must communicate with their eyes, this law makes their world a much
>> smaller place.
>>
>> I would appreciate any insight you have into this issue.
>>
>> Laurie
>>
>>
>> Laurie A. Murphy
>> Director | Audit & Accounting
>> xxxxxx@kmco.com
>> Kreischer Miller
>> 100 Witmer Road, Ste 350 | Horsham, PA 19044-2369
>> Phone: 215-441-4600 x173 | Fax: 215-420-1261
>>
>> www.kmco.com
>>
>>
>>
>>
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>

Deborah Bell, MA/CCC
Licensed Speech Pathologist
http://deborahbell.net/