Hi Erin,
I think an important measurement is speech rate.  This has clinical implications based on the Ball, Willis, Beukelman, and Yorkston research as you know.  I don't like using speech NOMs because they don't show all the benefits from our interventions (they measure "speech" which is declining but not functional communication which we can improve).  As you know, I use the ALS Functional Communication Scale to develop my severity measures for G-coding.  I just made a Communication Checklist for patients so they can jot down their challenges in the 7 functional communication areas.

Here is the patient friendly checklist  http://amyandpals.com/pdf-test/.

and the AFC Scale for professionals is at http://amyandpals.com/als-communication-scale/

Here is a review article that talks about the speech rate.  http://www.asha.org/Publications/leader/2004/041214/f041214a1.htm

Sincerely,

Amy Roman, MS, CCC-SLP
Augmentative Communication Specialist

AmyandpALS.Com
Pinterest.com/AmyandPALS

Forbes Norris ALS Research and Treatment Center
2324 Sacramento Street
San Francisco, CA 94115
Cell (415)518-0592
Fax (415)600-3778

--------------------------------------------
On Wed, 3/25/15, Gizzi, Nancy <xxxxxx@leememorial.org> wrote:

 Subject: RE: Measurement tools / ALS clinic
 To: "xxxxxx@alsa.simplelists.com" <xxxxxx@alsa.simplelists.com>
 Date: Wednesday, March 25, 2015, 2:13 PM

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 We rate the patients according to the
 NOMS, generally speech, voice, and swallowing – at times
 – AAC -  after we do our assessment.
   

 Nancy Gizzi, M.S., C.C.C.

 Speech-Language Pathology

 Lee Sports Medicine & Rehabilitation, Cape Coral
 Hospital

 Lee Memorial Health System
 xxxxxx@leememorial.org

 TEL  239-424-3572

 FAX 239-424-4035

   

 From: xxxxxx@alsa.simplelists.com
 [mailto:xxxxxx@alsa.simplelists.com]
 On Behalf Of Erin Singleton

 Sent: Wednesday, March 25, 2015 3:12 PM

 To: xxxxxx@alsa.simplelists.com

 Subject: Measurement tools / ALS clinic

   
 Good afternoon,
   
 I am wondering if any of
 the therapists on this list may be able to share with me
 your outcome measurement tools you use in ALS or MDA clinic.
 Any scales or patient/caregiver self-evaluation tools would
 work as well. Anything pertaining
  to speech, swallowing or cognition targeted towards our
 neuromuscular population. I am working on a PI project with
 our clinic and would love input from others! Thanks in
 advance. My email is
 xxxxxx@communitymedical.org

   
 Erin
   
   
 Erin Singleton M.A.,
 CCC-SLP

 Neuroscience Outpatient
 Rehabilitation Center

 2335 East Kashian Lane,
 Suite 301

 Fresno, California
 93701

 Office: (559)
 459-6056

 Fax: (559) 459-2957

 Email:
 xxxxxx@communitymedical.org

   
   
   
   
   
   

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