Hi Margaret,
That is so true and it is something that is often forgotten! I believe it falls under competencies 2 and 3 in the checklist but I will add it to the Example/Intervention area. Nice point and very challenging. I will check out your website on this.
Sincerely,
Amy Roman, MS, CCC-SLP
Augmentative Communication Specialist
AmyandpALS.Com
Pinterest.com/AmyandPALS
Forbes Norris ALS Research and Treatment Center
2324 Sacramento Street
San Francisco, CA 94115
Cell (415)518-0592
Fax (415)600-3778
--------------------------------------------
On Fri, 5/1/15, Margaret Cotts <xxxxxx@pacbell.net> wrote:
Subject: RE: New Handout: Communication Checklist for People with ALS
To: xxxxxx@alsa.simplelists.com
Date: Friday, May 1, 2015, 10:28 AM
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#yiv3357477769 Hi
Amy- What a good
idea! I wanted to
add one more thought… not sure if this belongs on your
list, but I wanted to put it out there…It has to do with
communication in specific locations/situations.
The main situation I’m thinking about is
bedtime/night time, but other situations which fall under
this category are bath-time, and communication while in
the car, etc.
I’m thinking of people who have good
communication set-up during the day (for example a laser
pointer and an SGD), but who can’t use these options in
bed at night.
(In other words, as part of the assessment process,
to make sure that the person has a way to communicate in the
middle of the night.)
I have a little section on this on my
website- http://lowtechsolutions.org/pages/why/location.html
Thanks again,
Margaret
Margaret CottsLow Tech
Solutions From: xxxxxx@alsa.simplelists.com
[mailto:xxxxxx@alsa.simplelists.com] On Behalf Of
Amy Roman
Sent: Thursday, April
30, 2015 10:21 PM
To: National ALS
Association AT Listserv
Subject: New
Handout: Communication Checklist for People with
ALS
Hi AT Listserv,Here is a downloadable PDF
checklist you can use in support groups, therapy or
provide to patients as a resource. The Communication
Checklist describes 7 communication abilities
that people with ALS should expect to have at all stages
of disease progression. Seven tangible goals are provided,
for example "I can alert people in other rooms (or
outside the home) when I have a need or emergency".
These goals along with examples of how these goals can be
met, included on the checklist, can help drive discussions
that lead to solutions. For SLPs: At the Forbes
Norris ALS/MDA Research and Treatment Center, my clinical
goals for patients are based on these 7 competencies which
allow me to document my interventions and demonstrate
progress on goals. Speech therapists can take a look
at the ALS
Functional Communication Scale and Measurement
Tool which generate G-Codes and are ideal for
note templates. Sincerely,
Amy Roman, MS, CCC-SLP
Augmentative Communication Specialist
AmyandpALS.ComPinterest.com/AmyandPALS
Forbes Norris ALS
Research and Treatment Center
2324
Sacramento Street
San Francisco, CA 94115
Cell (415)518-0592
Fax
(415)600-3778
