Have you looked at the PIADS by J.Jutai, OTR & colleagues ... I think that tool was developed several years ago & may of been piloted on PALS

Molly Doyle MS CCC
CART-Rancho Los Amigos National Rehabilitation Center
Downey CA 90242
www.rancho.org/cart

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>>> "Alisa Brownlee" <xxxxxx@xxxxxxxxxxxxxxxxxxx> 10/09/07 6:16 AM >>>

Hello all,

I have a question for the group.  Our Chapter is appling for a multi-year grant and one of the items is getting a outcomes measurement tool in place.  This would have to be applied to our AAC program which means capturing outcome data from assessments, training, follow up, useage, etc...

I was wondering if anyone in the group has used outcome measurements for the ALS population. Our PALS are in a very unique category when it comes to usage of assistive technology.  With other diagnoses, like CP or stroke, users have rehab goals to meet with their assistive technology.  Their outcomes can be tracked by how they achieved these goals.

Our patients do not have rehab goals because we are not in the business of rehab--unfortunately our patients die.  Capturing what they are using their communication device for is extremely difficult and often relies on caregivers responding for the patient. (sometimes after their death which tends to change their thoughts or responses)

I know some researchers have gathered info specific to ALS in terms of outcomes, but does anyone in the group have a practical hands-on outcome tool for AAC?

Many thanks,

Alisa

Alisa Brownlee, ATP
Assistive Technology Specialist
ALS Association, Greater Philadelphia Chapter

Assistive Technology Consultant, ALS Association, National Office

Direct Phone: 215-631-1877