From the ALS Association, National Office:

Patient Services' Topic Specific Call Program

September 2009

Check out these options for September.  You will also receive a reminder, with link information for each, about a week ahead of the call.  All calls are now recorded and available for reviewing on-line after each webinar.

Calls for Staff and Affiliates

Tuesday, September 1 at 9 AM PT

Addressing the White Elephant in the Room: Managing Cognitive and Behavior Change in ALS

Speaker: Beth Rush, Ph.D.

Dr. Rush will discuss the cognitive and behavioral symptoms that sometimes occur in ALS and review different methods of managing these challenging symptoms.  We will discuss research in this area and review case samples and management plans.  This presentation is intended to be interactive and practical - please feel free to bring case examples from your Chapter.

https://alsa.webex.com/alsa/j.php?J=824726587 <https://alsa.webex.com/alsa/j.php?J=824726587>

Meeting Number: 824 726 587

Meeting Password: Ptsvcs2009

Audio portion only (for those attending the audio teleconference only)  -  866-699-3239.

Wednesday, September 9 at 11 AM PT

Speakers: Carisa Bielecki, Thesis: "Predictors of Sexual Decline in ALS;" and Nalani Griffin Dunn, LCSW at Forbes Norris ALS/MDA Research Center.

ALS and Sexuality: What we know and what we want to know and what we can do

This presentation will overview past, present and future research on sexuality in ALS.  Practical applications will be reviewed in discussing the question, "What can we do to help patients and their partners?"

https://alsa.webex.com/alsa/j.php?J=829598804 <https://alsa.webex.com/alsa/j.php?J=829598804>

Meeting Number: 829 598 804

Meeting Password: Ps2009

Audio portion only (for those attending the audio teleconference only)  -  866-699-3239.

Thursday, September 17 at 9 AM PT  (Postponed from Aug. 20)

Cross Cultural Sensitivity and Competence

Speaker: Christine Richards

Ms. Richards will discuss basic differences and similarities in how various cultures and ethnic groups view illness, caregiving, death and grief.  Her comments will focus on how staff and professional caregivers can be sensitive to the potential for differences and appropriately honor the traditions and values of the many cultures and ethnic groups served by Chapters across the country.

Meeting Number: 829 456 727

Meeting Password: Ptsvcs2009

https://alsa.webex.com/alsa/j.php?J=829456727 <https://alsa.webex.com/alsa/j.php?J=829456727>

Audio portion (for those only joining the teleconference)  -  866-699-3239. Enter "#" twice

Discipline-Specific Series: Nutrition

While calls offered by the Discipline-specific Series Program are designed for professionals within the discipline, all interested affiliates are invited to attend, regardless of discipline.

Tuesday, September 15 at 10 AM PT

Role of the Registered Dietician in the Multidisciplinary Clinic

Speaker: Sue Johansen, RD

Ms. Johansen, RD, of the Vermont Certified ALS Center of Excellence will present an overview and discussion about the nutritional challenges experienced by people living with ALS.  Practical interventions and problem-solving tips will be included.

https://alsa.webex.com/alsa/j.php?J=827380704 <https://alsa.webex.com/alsa/j.php?J=827380704>

Meeting Number: 827 380 704

Meeting Password: Ps2009

Audio portion only (for those attending the audio teleconference only)  -  866-699-3239.

Alisa Brownlee, ATP
Clinical Manager, Assistive Technology Services
ALS Association National Office and Greater Philadelphia Chapter
Direct Phone: 215-631-1877

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