RE: BCI - Intendix Edward Hitchcock 29 Jan 2013 15:02 UTC

Jennifer, i cannot see the attachment, and am very interested in this.

I am currently trialing an intendix with a pALS, Unfortunately without much success so far although we are only 2 weeks into trial.  I will certainly write up and share my experience with this list.

Ed Hitchcock OT/L
Technology Center
Rehabilitation Institute of Chicago
________________________________________
From: xxxxxx@alsa.simplelists.com [xxxxxx@alsa.simplelists.com] on behalf of Coggiola, Jennifer L. [xxxxxx@ucsfmedctr.org]
Sent: Monday, January 28, 2013 8:06 PM
To: xxxxxx@alsa.simplelists.com
Subject: BCI - Intendix

I've attached a researcher's write-up of an Intendix BCI trial with one of my patients.  The researcher was in the Bay Area and graciously offered his time for this super-smart, loveable pALS.  This pALS was a vent-dependent tech guy from Silicon Valley who would have been described as a power-user on an EyeMax until his eyes were moderately affected by ALS.  In the end, my patient decided that the BCI was too fatiguing and slow, that low tech worked better although it was limiting, and he decided to withdraw from the vent.  The family gave me permission to pass this along to other pALS and this listserv specifically.

Jen Coggiola, MA, CCC/SLP
Speech Pathologist
ALS Center at UCSF
400 Parnassus Ave., 8th Floor
San Francisco, CA 94143
(415) 353-2122 clinic phone
(415) 353-2524 clinic fax
(925) 323-0175 cell phone
xxxxxx@ucsfmedctr.org
Confidentiality Notice: This message and any attachments are only for the intended recipient(s) and may contain confidential, privileged and/or protected health information. If you are not the intended recipient of this message, please: 1) be advised that unauthorized review, use, copying, disclosure, or distribution is strictly prohibited and may be unlawful; 2) notify the sender of the delivery by reply e-mail or contact RIC's Privacy Officer at 312.238.0766 or xxxxxx@ric.org<mailto:xxxxxx@ric.org>; and 3) delete and destroy all copies of the message and its attachments. Thank you.