RE: BCI - Intendix lisa 29 Jan 2013 15:34 UTC

This list does not allow attachments.....

 
Lisa M. Bruening, M.S., CCC-SLP
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-----Original Message-----
From: xxxxxx@alsa.simplelists.com
[mailto:xxxxxx@alsa.simplelists.com] On Behalf Of Coggiola, Jennifer
L.
Sent: Tuesday, January 29, 2013 10:11 AM
To: xxxxxx@alsa.simplelists.com
Subject: RE: BCI - Intendix

Oops!  Here you go.

Jen Coggiola, MA, CCC/SLP
Speech Pathologist
ALS Center at UCSF
400 Parnassus Ave., 8th Floor
San Francisco, CA 94143
(415) 353-2122 clinic phone
(415) 353-2524 clinic fax
(925) 323-0175 cell phone
xxxxxx@ucsfmedctr.org
________________________________________
From: xxxxxx@alsa.simplelists.com [xxxxxx@alsa.simplelists.com]
on behalf of Edward Hitchcock [xxxxxx@ric.org]
Sent: Tuesday, January 29, 2013 7:02 AM
To: xxxxxx@alsa.simplelists.com
Subject: RE: BCI - Intendix

Jennifer, i cannot see the attachment, and am very interested in this.

I am currently trialing an intendix with a pALS, Unfortunately without much
success so far although we are only 2 weeks into trial.  I will certainly
write up and share my experience with this list.

Ed Hitchcock OT/L
Technology Center
Rehabilitation Institute of Chicago
________________________________________
From: xxxxxx@alsa.simplelists.com [xxxxxx@alsa.simplelists.com]
on behalf of Coggiola, Jennifer L. [xxxxxx@ucsfmedctr.org]
Sent: Monday, January 28, 2013 8:06 PM
To: xxxxxx@alsa.simplelists.com
Subject: BCI - Intendix

I've attached a researcher's write-up of an Intendix BCI trial with one of
my patients.  The researcher was in the Bay Area and graciously offered his
time for this super-smart, loveable pALS.  This pALS was a vent-dependent
tech guy from Silicon Valley who would have been described as a power-user
on an EyeMax until his eyes were moderately affected by ALS.  In the end, my
patient decided that the BCI was too fatiguing and slow, that low tech
worked better although it was limiting, and he decided to withdraw from the
vent.  The family gave me permission to pass this along to other pALS and
this listserv specifically.

Jen Coggiola, MA, CCC/SLP
Speech Pathologist
ALS Center at UCSF
400 Parnassus Ave., 8th Floor
San Francisco, CA 94143
(415) 353-2122 clinic phone
(415) 353-2524 clinic fax
(925) 323-0175 cell phone
xxxxxx@ucsfmedctr.org
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