Dr. Sharma at UCSF has successfully made a palatial lift for one of my patients with Kennedy's disease.
Jen Coggiola, MA, CCC/SLP
Speech Pathologist
ALS Center at UCSF
400 Parnassus Ave., 8th Floor
San Francisco, CA 94143
(415) 353-2122 clinic phone
(415) 353-2524 clinic fax
(925) 323-0175 cell phone
xxxxxx@ucsfmedctr.org
________________________________________
From: xxxxxx@alsa.simplelists.com [xxxxxx@alsa.simplelists.com] on behalf of Erin Singleton [xxxxxx@communitymedical.org]
Sent: Thursday, February 14, 2013 2:24 PM
To: xxxxxx@alsa.simplelists.com
Subject: Hypernasality in Kennedys patient
Hi all!
I am looking for some help for a patient of mine with a diagnosis of Kennedy’s disease. He attends our ALS clinic. This gentlemen makes a living as a public speaker. His job constantly requires him to give speeches, meetings etc. Recently he is becoming more and more hypernasal with obvious nasal emissions. He has no onset of dysarthria just hypernasality.
He called today with a lot of questions regarding palatal lifts, exercises, or injections he’d like to consider pursuing as its becoming more difficult to do his job. He lives in the Pasadena area. I am in Fresno. (California)
Does anyone have info or experience with recommending palatal lifts? How about any type of injection to bulk that area within reason? I work most specifically with ALS patients with more advanced dysarthria so I don’t run into this situation often.
ANY help is appreciated even if it’s just a helpful trick!
Also,
Happy Valentine’s Day! ☺
Erin Singleton M.A., CCC-SLP
Neuroscience Outpatient Rehabilitation Center
2335 East Kashian Lane, Suite 301
Fresno, California 93701
Office: (559) 459-6056
Fax: (559) 459-2957
Email: xxxxxx@communitymedical.org<mailto:xxxxxx@communitymedical.org>
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