We have worked on such cases at UIHC at Iowa. I can help

Richard Hurtig
Sent from my iPhone

> On Mar 24, 2014, at 9:36 AM, "Alisa Brownlee" <xxxxxx@alsa-national.org> wrote:
>
> Looking for input from the group...any ideas?
> (see below)
>
> Alisa
>
> Alisa Brownlee, ATP
> Assistive Technology Specialist
> ALS (Lou Gehrig's Disease) Association, National Office and Greater Philadelphia Chapter
> Conference Chair, RESNA 2014 Convention
>
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>
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> June 11-15, 2014-JW Marriott Indianapolis, IN http://www.resna.org
>
>
>
> -----Original Message-----
> From: Kristy [mailto:xxxxxx@gmail.com]
> Sent: Sunday, March 23, 2014 5:16 PM
> To: Alisa Brownlee
> Subject: Guillain Barre Locked in
>
> We have a family member with Miller-Fisher Guillain-Barre. He contracted the disease just two weeks ago and within 36 hours became paralyized on a respirator. He can only move one eyebrow and his jaw up and sideways. He is cognitively aware and can communicate letter by letter if someone says the alphabet.  He moves his jaw when the correct letter is reached. This is a very slow process. He is a retired engineer and very brilliant.  Our first hurtle is trying to find a method he can use to call the nurse.
>
> Do you know of a way he could use his eyebrow movement to accomplish this basic necessity?  Please point us to the proper resources. The family and his ICU nursing staff have been unable to figure out this solution.
>
> Thank you in advance for any insight you can offer.