RE: Guillain Barre Locked in
jeremy linskell 24 Mar 2014 14:53 UTC
Hi Alisa
Broadened Horizons do a minimal movement switch,
http://www.broadenedhorizons.com/dual-sensor-switches
which isn't always easy to set up, buy may be worth a try
There is also Ablenet's SCATIR
http://www.ablenetinc.com/Assistive-Technology/Switches/SCATIR-Switch
which sounds as if it may work for him. In the UK we can get it with a
glasses-based sensor and this may work for him
regards
jeremy
Jeremy Linskell CEng, CSci, MIPEM
Principal Clinical Scientist
Electronic Assistive Technology Service
Ninewells Hospital
Dundee
Scotland
tel: 01382-496286
fax:01382-496322
Editorial Board Member of Journal of Assistive Technologies
http://pierprofessional.metapress.com/content/121393
> -----Original Message-----
> From: xxxxxx@alsa.simplelists.com [mailto:list-
> xxxxxx@alsa.simplelists.com] On Behalf Of Alisa Brownlee
> Sent: Monday, March 24, 2014 2:36 PM
> To: National ALS Association AT Listserv
> Subject: FW: Guillain Barre Locked in
>
> Looking for input from the group...any ideas?
> (see below)
>
> Alisa
>
> Alisa Brownlee, ATP
> Assistive Technology Specialist
> ALS (Lou Gehrig's Disease) Association, National Office and Greater
> Philadelphia Chapter
> Conference Chair, RESNA 2014 Convention
>
> Follow me on Twitter: @alsassistivetec
> Facebook: Alisa Brownlee ALS
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>
> Mark your calendars!
> RESNA's 2014 Conference is "Racing Towards Excellence in Assistive
> Technology"
> June 11-15, 2014-JW Marriott Indianapolis, IN http://www.resna.org
>
>
>
> -----Original Message-----
> From: Kristy [mailto:xxxxxx@gmail.com]
> Sent: Sunday, March 23, 2014 5:16 PM
> To: Alisa Brownlee
> Subject: Guillain Barre Locked in
>
> We have a family member with Miller-Fisher Guillain-Barre. He contracted
> the disease just two weeks ago and within 36 hours became paralyized on a
> respirator. He can only move one eyebrow and his jaw up and sideways. He
> is cognitively aware and can communicate letter by letter if someone says
> the alphabet. He moves his jaw when the correct letter is reached. This
> is a very slow process. He is a retired engineer and very brilliant. Our
> first hurtle is trying to find a method he can use to call the nurse.
>
> Do you know of a way he could use his eyebrow movement to accomplish this
> basic necessity? Please point us to the proper resources. The family and
> his ICU nursing staff have been unable to figure out this solution.
>
> Thank you in advance for any insight you can offer.
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