McGill QoL is great, and I have used this often for ALS studies. See attached tools and documentation of the validation.

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Jeannie Boyle RN, BSN
Nurse Educator, Project ECHO
Rheumatology and Chronic Pain
505-277-0762   fax 505.272.6906
xxxxxx@xxxxxxxxxxxxx
1001 Medical Arts Ave NE. Bldg 424
Abq, NM 87102

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>>> "Alisa Brownlee" <xxxxxx@xxxxxxxxxxxxxxxxx> 8/5/2009 9:05 AM >>>
A question for the list from a colleague:

do you guys do an quality of life measures related to AT/AAC?  i'm
looking for something to put into a grant app for measuring
satisfaction/qol.  i don't think als-frs will give us that.
i'd be interested to find something.  some folks use the paids.  there is also the qwest.  i haven't used either.

I know there are diferent QOL measurements out there, but I haven't found any to be appliable to our population.  I would appreciate hearing what others are using, if anything.  (or perhaps this is something we form a committee to do)

Thanks,
Alisa

Alisa Brownlee, ATP
Clinical Manager, Assistive Technology Services
ALS Association National Office and Greater Philadelphia Chapter
Direct Phone: 215-631-1877

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